Jon is a multihandicapped 11 year old boy. He was born without eyes and has many disabilities. He needs full care 24/7. Jon eats intravenously and takes a lot of medication. He can't talk or communicate. He doesn't understand words and he doesn't have the ability to learn. Also he can't walk or use his body.
Communication therefore goes by tone of voice and touching. He has a number of different wheelchairs that he use for different activities. Jon loves to listen to fairytales and children's songs, and is really into it when his mother sings or tells him stories. The family have a very strong and touching bond. There is so much about this rare little boy; I am going to continue to follow him and his family.
— Sara Marie Ramsøe
An intimate family album documents the freedoms of childhood among six siblings "at the edge of the world" in rural France.
Using decorative elements, the photographer fashions anonymous mixed heritage portraits playing on the ideas of mark, fight and femininity.
An exhibition at the