With and Without You

Daniel Wilbur was born on September 21st, 1984, delivered several weeks prematurely and promptly diagnosed with cerebral palsy. Despite early uncertainty over his life expectancy, my brother enjoyed a healthy childhood and adolescence marred by just a few medical crises. However, the past four years have seen the rapid deterioration of his health, necessitating his transfer to a hospital center and later to a nursing home facility; when he left us, it felt as if a crucial thread had been pulled from the fabric of our home. “With and Without You” presents the viewer with a portrait of a family irreparably fractured by the loss of Daniel, who is currently bedridden in a nursing home and secluded from the outside world.